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    News

    Community

    Golf Tournament

    The 1st Inaugural Milestones for Maxwell Golf Tournament will be held on August 17th, 2020 at Fossil Trace Golf Course in Golden, Colorado. We have another EXCITING announcement!  The fabulous and talented Denise Plante from The Bull 106.7  will be Read more…

    By SLC6A1 Gene, 6 yearsJune 4, 2020 ago
    Home Cuts For A Cure
    Advocacy

    Home Cuts for A Cure

    Who Needs a Haircut!?! Especially a Home Cut!?! We have decided to have some fun with our hair while raising awareness for SLC6A1.  I have never laughed so hard in my life with #HomeCutsForACure. Exhibit A: Mark Freed with a Read more…

    By SLC6A1 Gene, 6 yearsApril 24, 2020 ago
    Advocacy

    Striving for Mediocrity

    Learn to be Thankful for What you Already Have, While you Pursue all that You Want – Jim Rohn          A month ago, I sat in the waiting room as Maxwell finished up his horse therapy session.  Gone are the Read more…

    By SLC6A1 Gene, 6 yearsApril 19, 2020 ago
    Community

    A Birthday to Remember

    I had planned a massive birthday party for the twins with a music class, Peppa the Pig appearance, lots of decorations and of course, good food.  Unfortunately, COVID19 reset all expectations and plans for the world.  At Some Point You Read more…

    By SLC6A1 Gene, 6 yearsMarch 31, 2020 ago
    Events

    Upcoming Events – Save the Date

    Lots of Fun Things! SLC6A1 Connect will be hosting the First Annual Golf Tournament at Fossil Trace Golf Course in Denver, CO. The course is truly beautiful and there will be a lot of fun surprises.  If you are interested Read more…

    By SLC6A1 Gene, 6 yearsJanuary 29, 2020 ago
    Events

    JP Morgan Chase

    JP Morgan hosts the world’s largest healthcare conference every year in San Francisco. If you want to learn about the latest innovation and advances in biotech, the conference is the place to be. Not only does it boast world renowned Read more…

    By SLC6A1 Gene, 6 yearsJanuary 20, 2020 ago
    Community

    A New Year

    Living with a Rare Disease is like Walking a Tightrope over the Grand Canyon.  Your gaze must stay focused forward on achieving treatment.  You can never look backward or down because you will stumble and fall. In 2019, we stepped out Read more…

    By SLC6A1 Gene, 6 yearsJanuary 2, 2020 ago
    Community

    Merry Christmas from the Freed Family!

    Maxwell and Riley knew that Santa Clause was coming to town on Christmas Eve and were so excited! Well, they were * kind of * excited.  They did not enjoy meeting Santa at the mall  as you can see.  Riley Read more…

    By SLC6A1 Gene, 6 yearsDecember 26, 2019 ago
    Research

    The Mouse Has Landed

    I will literally do anything to help Maxwell even if it requires smuggling mice internationally. Before I even dive into this blog post, BuzzFeed has done an incredible job telling my story – from developing a gene therapy to creating Read more…

    By SLC6A1 Gene, 6 yearsDecember 12, 2019 ago
    Partners/Philanthropy

    Matching Grant

    A Generous Donor is Matching Every Dollar Raised for October & November! We have the most loyal friends that want to see Maxwell & every other affected child cured of SLC6A1.  A generous donor is matching up to $50,000 raised Read more…

    By SLC6A1 Gene, 6 yearsNovember 3, 2019 ago

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