Rare Disease Support
Join the Rare Disease Educational Support Program. The Rare Disease Education Support Program is designed to offer rare disease patients and/or their families/caregivers an opportunity to participate in educational programs and conferences that offer rare disease content. NORD’s program provides financial support for registration costs (and once conferences are no longer solely virtual, the program will also provide limited assistance with associated travel and lodging costs for conference participation).
The Program offers families a free, direct connection with a peer support specialist. Peer support specialists are parents, too. They are trained to listen to you along this emotional journey without judgment and will share trusted information and helpful resources.