SLC6A1 Support

SLC6A1 Facebook Support GroupHere

Epilepsy Support

Doose Facebook Group:  Here

Epilepsy Foundation:  Here

Child Neurology Foundation (CNF) Family and Empowerment Program:  The Program offers families a free, direct connection with a peer support specialist.  Peer support specialists are parents, too.  They are trained to listen to you along this emotional journey without judgment and will share trusted information and helpful resources.  Here

Chelesea Hutchinson Foundation:  Here

Doose Syndrome Epilepsy Alliance
PO Box 15224
Colorado Springs, CO 80935-5224
Toll-free: (855) DOOSE-NOW
Telephone: (855) 366-7366

Rare Disease Support

Unique Chromosome Cafe:  Here