SLC6A1 Support
SLC6A1 Facebook Support Group: Here
Epilepsy Support
Doose Facebook Group: Here
Epilepsy Foundation: Here
Child Neurology Foundation (CNF) Family and Empowerment Program: The Program offers families a free, direct connection with a peer support specialist. Peer support specialists are parents, too. They are trained to listen to you along this emotional journey without judgment and will share trusted information and helpful resources. Here
Chelesea Hutchinson Foundation: Here
Doose Syndrome Epilepsy Alliance
PO Box 15224
Colorado Springs, CO 80935-5224
Toll-free: (855) DOOSE-NOW
Telephone: (855) 366-7366
E-mail: info@doosesyndrome.org
Website: http://www.doosesyndrome.org/
Rare Disease Support
Unique Chromosome Cafe: Here