SLC6A1 Support
Private SLC6A1 Support Group: Here
Inspire: Here
Rare Disease Support
Unique: Here
Global Genes: Here
National Organization of Rare Disease: Here
Epilepsy Support
Doose Facebook Group: Here
Epilepsy Foundation: Here
Child Neurology Foundation (CNF) Family and Empowerment Program: The Program offers families a free, direct connection with a peer support specialist. Peer support specialists are parents, too. They are trained to listen to you along this emotional journey without judgment and will share trusted information and helpful resources. Here
Doose Syndrome Epilepsy Alliance: Here