Press Release

FOR IMMEDIATE RELEASE Contact: Amber Freed, SLC6A1 Connect Phone: 303-907-8038 Email: afreed@slc6a1connect.org SLC6A1 Connect Founder and CEO Receives RARE Champion of Hope Award Nomination The Global Genes RARE Champion of Hope Awards honor and recognize true champions for rare disease. DENVER, CO, May 2018 – SLC6A1 Connect is proud to announce that our founder Read more…

The HuffPost

  The Huffington Post recently devoted time with my family to fully understand our daily struggles as we battle a rare disease to save Maxwell.  The journalist and photographer deeply cared about Maxwell and felt our sense of urgency as we frantically race to develop a gene replacement therapy for Read more…

Maxwell’s Gala Recap

Thrive Mortgage hosted a gala Friday evening to benefit Maxwell and the night was absolutely incredible.  Guests arrived to a #MilestonesForMaxwell red carpet before heading into the beautiful event. The event was so much fun with so many games!  The silent auction featured artwork from Lindsay Jane Ternes Fine Art Read more…