I had planned a massive birthday party for the twins with a music class, Peppa the Pig appearance, lots of decorations and of course, good food.  Unfortunately, COVID19 reset all expectations and plans for the world. 

At Some Point You Just Have to Let Go of What You Thought Should Happen and Live in What is Happening.

This statement could not be more true in parenting, rare diseases, pandemics and in life.

The terrain differed from our map this year, so we  changed our plans accordingly.

Maxwell & Riley had an incredible time celebrating their birthday socially distancing style.  We decorated the front yard by setting up every seasonal decoration we owned and borrowing our neighbor’s decorations.

We made large signs for neighbors to honk 3x for the twin’s 3rd birthday and wrote on our sidewalks with chalk. IMG_4782

We passed out cupcakes via a selfie stick and threw biscuits to dogs.  Best of all, Mark took the duty of becoming Peppa the Pig.  Like a scene from National Lampoon’s Christmas Vacation, Mark stood in the front yard and waved to all of our neighbors. 


The twins thought it was fantastic! Maxwell loved the giant Halloween dragon on our porch and Riley loved the dinosaurs scattered through the yard.

Our local news even covered the story:

Local Denver Media

During these uncertain times more than ever, I find it comforting to be grateful for what we have and embrace unexpected changes.

Now, more than ever, we need each other and support to get through life’s unexpected events.


SLC6A1 Gene

I am a mother of a beautiful boy with an SLC6A1 mutation and I am dedicated to finding the best treatment possible for my son.


HEATHER S ALBRITTON · March 31, 2020 at 3:58 pm

So glad we could drive by and celebrate the twins 3rd birthday. An honor to be invited and share in the fun.

Maggie Spoth · April 1, 2020 at 4:24 pm

HAPPY BIRTHDAY MAX & RILEY!!! Sending cheesy pizza stuffed hugs from Cleveland, Ohio to the birthday twins!

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