Hello everyone, In December 2022, SLC6A1 Connect hosted a symposium on the latest trends and research into SLC6A1 disorders. The event preceded the annual American Epilepsy Society (AES) Conference. Both events occurred in Nashville, Tennessee. SLC6A1 researchers and families of SLC6A1 patients attended the symposium. As a father of an Read more…
The 1st Inaugural Milestones for Maxwell Golf Tournament will be held on August 17th, 2020 at Fossil Trace Golf Course in Golden, Colorado. We have another EXCITING announcement! The fabulous and talented Denise Plante from The Bull 106.7 will be judging our #MulletsforMaxwell contest! People may enter the contest digitally Read more…
Who Needs a Haircut!?! Especially a Home Cut!?! We have decided to have some fun with our hair while raising awareness for SLC6A1. I have never laughed so hard in my life with #HomeCutsForACure. Exhibit A: Mark Freed with a Mullet. Everyone that knows Mark well would barely recognize him Read more…
Lots of Fun Things! SLC6A1 Connect will be hosting the First Annual Golf Tournament at Fossil Trace Golf Course in Denver, CO. The course is truly beautiful and there will be a lot of fun surprises. If you are interested in participating or sponsoring, please let me know. Milestones for Read more…
JP Morgan hosts the world’s largest healthcare conference every year in San Francisco. If you want to learn about the latest innovation and advances in biotech, the conference is the place to be. Not only does it boast world renowned talent, it is also a source of hope for patients. Read more…
First a fundraising update – we have raised over $200,000 with over 1,300 contributors since we started our campaign four months ago. Thank you! Thank you! Thank you! Are you in Denver, the Golden Area or Pueblo and would like to support our efforts to cure his rare neurological disease? Read more…
Thrive Mortgage hosted a gala Friday evening to benefit Maxwell and the night was absolutely incredible. Guests arrived to a #MilestonesForMaxwell red carpet before heading into the beautiful event. The event was so much fun with so many games! The silent auction featured artwork from Lindsay Jane Ternes Fine Art Read more…
Kim Christiansen with 9News graciously told our story on the Denver news tonight. Our family anxiously gathered around the TV waiting for our big debut. Kim covered our story with the care and understanding of a fellow mother, and our comfort during the interview is evident in the finished product. Read more…
Maxwell is surrounded by guardian angels and his army grows daily. One of his guardian angels is a woman named Laura Leavy with Thrive Mortgage. Thrive Mortgage & Legend Title host an annual business mixer & client appreciation charity gala. Laura Leavy selected our non-profit to be the recipient of the gala this year! We could not be more humbled, honored or excited for this fun filled event. There will be a red carpet, wine pull, raffle, silent and live auction items. The evening is going to be an absolute blast with confirmed celebrities:
Please join us for the star studded event! We look forwarding to seeing you there! Thank you again to Thrive Mortgage & Legend Title. Tickets can be purchased here:
We put on the first symposium for Maxwell’s disease in late November and it was an overwhelming success. The many late nights of planning all came to fruition in the best way possible! The experience of having 50 brilliant scientists, from all over the world, collaborating on the cure for Read more…