“Alone we can do so little, together we can do so much.”

–Helen Keller


To Do List:
  1. First and foremost, it is vital to join our patient registry with Simons Searchlight.  Click here for more information: SLC6A1 Patient Registry A patient registry is the primary method to connect patients with researchers and to alert patients of new treatments. 
  2. Contact Amber Freed at afreed@SLC6A1Connect.org to be included in the private patient directory. You will receive important advocacy information.
  3. Sign up for RDMD a medical records and research solution.
  4. Familiarize yourself with various research and support groups to find community and to raise awareness on our disease. Click Here
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