Newly Diagnosed

“Alone we can do so little, together we can do so much.”

–Helen Keller

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To Do List:

  1. First and foremost, it is vital to join our patient registry with Simons Searchlight.   Click here for more information:  SLC6A1 Patient Registry  A patient registry is the primary method to connect patients with researchers and to alert patients of new treatments. 
  2. Contact Amber Freed at afreed@SLC6A1Connect.org to be included in the private patient directory.  You will receive important advocacy information.
  3. Register with various research and support groups to find community and to raise awareness on our disease.  Click Here