Newly Diagnosed

“Alone we can do so little, together we can do so much.”

–Helen Keller

To Do List:

1. First and foremost, it is vital to join our patient registry with Simons Searchlight.  Click here for more information: SLC6A1 Patient Registry A patient registry is the primary method to connect patients with researchers and to alert patients of new treatments. 
2. Contact Amber Freed at afreed@SLC6A1Connect.org to be included in the private patient directory. You will receive important advocacy information.
3. Sign up for RDMD a medical records and research solution.
4. Familiarize yourself with various research and support groups to find community and to raise awareness on our disease. Click Here