Today was too good not to share!!! I had a meeting with my congressional representative, the honorable Van Taylor to discuss rare disease advocacy at the state and national level. Rare diseases are considered too Read more…
Amber and her husband Mark are the parents of adorable twins, Miss Riley James and Mr. Maxwell Norman. In 2018, Maxwell was diagnosed with a de novo SLC6A1 gene variant, which prompted Ms. Freed to find her true calling in life – find a cure for this genetic disorder.