SLC6A1 is a rare neurological condition in small children that causes seizures, severe movement and speech disorders and intellectual disability.
SLC6A1 Connect is a patient advocacy group dedicated to improving the lives of children and families affected by SLC6A1.
Our focus is to raise awareness and fundraising to advance scientific research that will ultimately result in a cure.
SLC6A1 families from Kansas City, Iowa, New York City, Belgium, and the Netherlands all headed to Dallas to visit us! We had some belly laughs and created unforgettable memories. We all share a bond only Read more…
Today was too good not to share!!! I had a meeting with my congressional representative, the honorable Van Taylor to discuss rare disease advocacy at the state and national level. Rare diseases are considered too Read more…
My birthday was Saturday which in rare disease world equates to the obligatory fundraiser. This year, I am celebrating a success along with our faithful donors that have made this moment possible. Last December, many Read more…
Feel free to contact me day or night.
