SLC6A1 is a rare neurological condition in small children that causes seizures, severe movement and speech disorders and intellectual disability.
SLC6A1 Connect is a patient advocacy group dedicated to improving the lives of children and families affected by SLC6A1.
Our focus is to raise awareness and fundraising to advance scientific research that will ultimately result in a cure.
#ShineYourSearchlight ✨ Share your medical history with @SimonsSearchlight! This will help you and researchers get a more accurate picture of what it means to have SLC6A1 over time. All medical history information is shared by completing Read more…
#ShineYourSearchlight ✨ Have you uploaded your genetic lab report to your @SimonsSearchlight dashboard? Researchers need specific details in your genetic lab report to learn more about SLC6A1. No genetic lab report? Their team will do Read more…
Dear Family, Friends and Supporters of SLC6A1 Connect, As Rare Disease Day 2023 is upon us, we are still fighting every day for our children to have the best chance they can have at life. Read more…
Feel free to contact me day or night.
