We’re so excited to share a big win for our community. This is happening because of our selfless donors that walk alongside of us every single day. In thanks to our support, SLC6A1 Connect is funding a clinical trial to repurpose an FDA approved drug named Ravicti made by Horizon Read more…
I was exactly 34 weeks pregnant, and it was the day of my maternity photoshoot. Our sweet photographer said 34 weeks is the perfect time because women are glowing, but that is not the case when you are 5’2, 100 pounds and carrying twins. I could barely walk, Mark put Read more…
Bird Feeders Galore! Feeding wild birds is the perfect way to add some calm to your life, and to contribute to a great cause! Use discount code “MAX” to get 15% off a bird feeder from MoreBirds.com. Plus, they’ll donate a whopping 20% of the proceeds to Milestones for Maxwell. This Read more…
The 1st Inaugural Milestones for Maxwell Golf Tournament will be held on August 17th, 2020 at Fossil Trace Golf Course in Golden, Colorado. We have another EXCITING announcement! The fabulous and talented Denise Plante from The Bull 106.7 will be judging our #MulletsforMaxwell contest! People may enter the contest digitally Read more…
I had planned a massive birthday party for the twins with a music class, Peppa the Pig appearance, lots of decorations and of course, good food. Unfortunately, COVID19 reset all expectations and plans for the world. At Some Point You Just Have to Let Go of What You Thought Should Read more…
A Generous Donor is Matching Every Dollar Raised for October & November! We have the most loyal friends that want to see Maxwell & every other affected child cured of SLC6A1. A generous donor is matching up to $50,000 raised during the months of October and November. In the great Read more…
I spent my career in equity analysis and made some very dear friends along the way, most recently at Janus Henderson Investors. When doctors began warning us that Maxwell was not well, I left my career in a frazzled, frantic state. I tried to be strong the day I resigned Read more…
We put on the first symposium for Maxwell’s disease in late November and it was an overwhelming success. The many late nights of planning all came to fruition in the best way possible! The experience of having 50 brilliant scientists, from all over the world, collaborating on the cure for Read more…
FOR IMMEDIATE RELEASE Contact: Amber Freed, SLC6A1 Connect Phone: 303-907-8038 Email: afreed@slc6a1connect.org SLC6A1 Connect Partners with Dr. Steven Gray Pre-clinical lab work currently underway on gene replacement therapy to treat SLC6A1 DENVER, CO, October 2018 – SLC6A1 Connect is proud to announce a partnership with Dr. Steven Gray from UT Read more…