I had planned a massive birthday party for the twins with a music class, Peppa the Pig appearance, lots of decorations and of course, good food. Unfortunately, COVID19 reset all expectations and plans for the world. At Some Point You Just Have to Let Go of What You Thought Should Read more…
A Generous Donor is Matching Every Dollar Raised for October & November! We have the most loyal friends that want to see Maxwell & every other affected child cured of SLC6A1. A generous donor is matching up to $50,000 raised during the months of October and November. In the great Read more…
I spent my career in equity analysis and made some very dear friends along the way, most recently at Janus Henderson Investors. When doctors began warning us that Maxwell was not well, I left my career in a frazzled, frantic state. I tried to be strong the day I resigned Read more…
We put on the first symposium for Maxwell’s disease in late November and it was an overwhelming success. The many late nights of planning all came to fruition in the best way possible! The experience of having 50 brilliant scientists, from all over the world, collaborating on the cure for Read more…
FOR IMMEDIATE RELEASE Contact: Amber Freed, SLC6A1 Connect Phone: 303-907-8038 Email: afreed@slc6a1connect.org SLC6A1 Connect Partners with Dr. Steven Gray Pre-clinical lab work currently underway on gene replacement therapy to treat SLC6A1 DENVER, CO, October 2018 – SLC6A1 Connect is proud to announce a partnership with Dr. Steven Gray from UT Read more…