Dear Family, Friends and Supporters of SLC6A1 Connect,
As Rare Disease Day 2023 is upon us, we are still fighting every day for our children to have the best chance they can have at life. We didn’t ask or hope to be here, again. We don’t want to be begging for answers, for money, for a cure—but we have no choice.
Please take 2 minutes to watch this video some of the beautiful faces impacted by this insidious disease.
Each and every one of these families believed they were taking home a healthy baby, only to have the rug pulled out from under them. I would not wish any parent to ever experience the nightmare of rare pediatric disease. All the hopes and dreams you had for your newborn baby slowly slip from your fingertips as you frantically search for answers, schedule appointments, and simply just try to keep your head above water. For us, the only option is to cure the disease ourselves.
Thank you from the bottom or our hearts for your ardent and continued support. Knowing we are not alone in this means everything. Please consider making a secure donation to help our quest for a cure.