Our friends at @SimonsSearchlight created a new quarterly report with updated information shared by our families and feature a special spotlight on developmental growth charts, using insights based on the Vineland Adaptive Behavior Scales (Vineland-3) data, which show skills at different ages. Caregivers share how their loved ones with the genetic condition progress in communication, self-care, social skills, and motor skills (in younger children). The Vineland data helps doctors and researchers understand how skills change over time.

To help families understand these charts, they created a short video: bit.ly/Searchlight_Vineland_Graph.

Participating in Simons Searchlight surveys is very important to the longevity of SLC6A1 research. View this report on the SLC6A1 page by clicking the Download button above or by visiting the Simons Searchlight SLC6A1 page.

*Not a current Simons Searchlight participant? Learn more on how you can contribute to our study and be part of the next quarterly report: www.simonssearchlight.org

Sandra McEntee

SLC6A1 Mom to Kat


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