Kim Christiansen with 9News graciously told our story on the Denver news tonight. Our family anxiously gathered around the TV waiting for our big debut. Kim covered our story with the care and understanding of a fellow mother, and our comfort during the interview is evident in the finished product. You can tell Mark and I felt like we were with family, chatting about our sweet Maxwell and Riley like it was any other day.
My birthday was Saturday which in rare disease world equates to the obligatory fundraiser. This year, I am celebrating a success along with our faithful donors that have made this moment possible. Last December, many Read more…
Dear SLC6A1 Supporters,  The Star Studded, Milestones For Maxwell, golf tournament is this Thursday (the 29th) and our silent auction just went live!  Do you need a private condo in Beaver Creek for a weekend? Read more…
We’re so excited to share a big win for our community. This is happening because of our selfless donors that walk alongside of us every single day. In thanks to our support, SLC6A1 Connect is Read more…
1 Comment
Harriet Renner · February 22, 2019 at 4:37 am
Very, very touching. I pray for a cure and the money will come soon. Blessings, Harriet Renner