Mark and I have dear friends named James & Aimee with a beautiful daughter named Vero.  Vero is just a little younger than Maxwell & Riley.  We knew the kids would be best friends from the moment we found out Aimee was pregnant.  In fact, Vero and Maxwell are probably going to get married.  Vero has been the most fun play date while James and Aimee have been a constant source of friendship and support.  You could not ask for better friends.  Adorable little Vero celebrated her first birthday yesterday. You can imagine my reaction when a message landed in my gmail that in lieu of gifts, Vero preferred donations to help Maxwell. My eyes filled with happy tears. The kindness is overwhelming.


Vero’s 1st Birthday was the social event of the year.  Vero was dressed in ruffled navy dress to complement her smash cake and Maxwell wore his 3-piece suit to impress Vero.  Vero was successful in enjoying her smash cake and Maxwell was successful in impressing Vero.  Every party attendee loved on Maxwell and wanted to help us along our journey even though Riley jumped in the smash cake.  I am learning that this journey consists of very high highs and very low lows.  Yesterday was an excellent day.

SLC6A1 Gene

I am a mother of a beautiful boy with an SLC6A1 mutation and I am dedicated to finding the best treatment possible for my son.


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