On this Christmas Day, we are reflecting on our many blessings.
We are more than blessed. We have beautiful twins. We have more good days than bad days. We have hope. We have a faith stronger than oak.
Merry Christmas! We hope everyone is having a wonderful day filled with joy.
Maxwell and Riley’s mom – Amber
I am a mother of a beautiful boy with an SLC6A1 mutation and I am dedicated to finding the best treatment possible for my son.
Hello again! In continuation of Rare Disease Week, we want to talk specifically about the rare disease that affects our kids and families, SLC6A1 Epileptic Encephalopathy. SLC6A1 epileptic encephalopathy is a rare neurological condition in children that causes Read more…
SLC6A1 families from Kansas City, Iowa, New York City, Belgium, and the Netherlands all headed to Dallas to visit us! We had some belly laughs and created unforgettable memories. We all share a bond only Read more…
Today was too good not to share!!! I had a meeting with my congressional representative, the honorable Van Taylor to discuss rare disease advocacy at the state and national level. Rare diseases are considered too Read more…
1 Comment
Kam Bassi · December 25, 2018 at 10:33 pm
A Very Very Merry Christmas to all the SLC families. We are very lucky to have found each other. 2019 is going to be a Year where we all come together and push hard for a Cure. It is going to happen. Together we are strong. Let’s All reflect on what and we do and how can we Help. God Bless all the Families