Contact: Amber Freed, SLC6A1 Connect

SLC6A1 Connect Founder and CEO Receives RARE Champion of Hope Award Nomination

The Global Genes RARE Champion of Hope Awards honor and recognize true champions for rare disease.

DENVER, CO, May 2018 – SLC6A1 Connect is proud to announce that our founder and CEO, Amber Freed, has been nominated for the Global Genes RARE Champion of Hope award, which recognizes individuals, organizations or collaborations that have made an impact in rare disease advocacy, medical care and treatment, or science and technology.

Awardees will be honored at the RARE Champion of Hope Celebration on Friday, September 20, 2019, at the Sheraton San Diego Hotel & Marina as part of the RARE Patient Advocacy Summit.

Amber is so proud and honored to have received this nomination, which illustrates that the 70-hour work weeks, frequent travel, and copious tears dedicated to the foundation and advocating for SLC6A1 have not gone unnoticed. She will continue to “fight like a mother,” both for her son and for all children affected by SLC6A1.

Web Link: RARE Champion of Hope Awards


If you would like more information about this topic, please contact Amber Freed at

SLC6A1 Gene

I am a mother of a beautiful boy with an SLC6A1 mutation and I am dedicated to finding the best treatment possible for my son.

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