Press Release

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FOR IMMEDIATE RELEASE

Contact: Amber Freed, SLC6A1 Connect
Phone: 303-907-8038
Email: afreed@slc6a1connect.org

SLC6A1 Connect Founder and CEO Receives RARE Champion of Hope Award Nomination

The Global Genes RARE Champion of Hope Awards honor and recognize true champions for rare disease.

DENVER, CO, May 2018 – SLC6A1 Connect is proud to announce that our founder and CEO, Amber Freed, has been nominated for the Global Genes RARE Champion of Hope award, which recognizes individuals, organizations or collaborations that have made an impact in rare disease advocacy, medical care and treatment, or science and technology.

Awardees will be honored at the RARE Champion of Hope Celebration on Friday, September 20, 2019, at the Sheraton San Diego Hotel & Marina as part of the RARE Patient Advocacy Summit.

Amber is so proud and honored to have received this nomination, which illustrates that the 70-hour work weeks, frequent travel, and copious tears dedicated to the foundation and advocating for SLC6A1 have not gone unnoticed. She will continue to “fight like a mother,” both for her son and for all children affected by SLC6A1.

Web Link: RARE Champion of Hope Awards

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If you would like more information about this topic, please contact Amber Freed at 303-907-8038, or e-mail afreed@slc6a1connect.org