VIPrareCARE.com and the VIP Rare C.A.R.E. Binder were created for families caring for adults with rare epilepsies.
The C.A.R.E. Binder addresses:
- Transitioning your loved one from the pediatric care setting to adult care providers
- Planning for long-term care after age 22 and beyond as your loved one ages
- Planning for the time when you are no longer able to provide primary care giving for your loved one
VIPrareCARE.com and the C.A.R.E. Binder were proudly developed in collaboration with the Dravet Syndrome Foundation, Lennox-Gastaut Syndrome Foundation, TSC Alliance and other organizations who support families like yours and was made possible through UCB funding and partnership.
We’d love to hear your feedback on the C.A.R.E. Binder. Please click here to share your insights.
