Amber N. Freed is Fighting Like a Mother to cure SLC6A1.
Ms. Freed serves as the Founder and CEO of SLC6A1 Connect. She is the proud mother of adorable twins, Miss Riley James and Mr. Maxwell Norman. Maxwell was just 18 months old when she received his devastating diagnosis of SLC6A1, a rare neurological disease. Ms. Freed left her career in equity research analysis the day Maxwell was diagnosed and dedicated her life to finding a cure. In a few short years, Amber has single-handedly repurposed a drug, driven multiple translational treatments forward and become a leader within the rare disease community.
SLC6A1 Connects work has elevated awareness and created an ecosystem that can systematically help fund and consolidate research and treatment efforts. Her efforts have been highlighted in the Huffington Post, People, Bloomberg, CNBC and many more. Ms. Freed was featured in the best-selling book, Shortcut to Prosperity, as an example of grit well before her skills were put to the ultimate test. Prior to Founding SLC6A1 Connect, Ms. Freed served in a variety of equity and financial analysis roles, most recently as a consumer equity analyst with Janus Henderson Investors. Ms. Freed attended the University of Denver for both undergraduate and graduate school, receiving degrees in Accounting on a full academic scholarship.
Ms. Freed was nominated for the Global Genes Rare Champion of Hope Award and sits on the Board of COMBINEDBrain, the United Leukodystrophy Foundation, Rare Village and Hannah’s Hope Foundation.
Amber can be reached at any hour of the day to slay rare disease.