Lennon

CHILD'S NAME: Lennon

CURRENT AGE: 8

HOMETOWN & STATE: Eau Claire, Wisconsin

DIAGNOSIS DATE: April 2021

PARENTS: Breana and Neil

SIBLINGS: Abram and Vera

What did it feel like when we learned that Lennon had SLC6A1?

We have a unique story learning about her diagnosis. She was officially diagnosed in 2021 but we were not told by her neurologist until 2024 when we had her re-evaluated by a new one! We felt RELIEF. Lennon made so much more sense to us, and what she was feeling, experiencing, etc.

The hardest part of being a SLC6A1 family?

Her communication needs! It has been a process with schools and others to get to a point where they can evaluate her based on how she communicates as well as make sure that her needs are met. She gets so frustrated trying to talk to folks who just don't understand what she's saying. We are thankful for her AAC device but she refuses to use it outside of a school setting so often myself and her brother have to communicate or translate for her.

What are your dreams for Lennon?

That she can be independent, make friends, and have a happy long life.

Why would you like people to donate to SLC6A1 Connect?

Donating to SLC6A1 contributes to more research, more trials of new medications, and a better life for the kids living with this debilitating disease. Every dollar counts, and our children are counting on us!