Haley

CHILDS NAME: Haley

CURRENT AGE: 4

HOMETOWN & STATE: Noblesville, IN 

DIAGNOSIS DATE: October 2022

PARENTS: Matthew and Emily

SIBLINGS: Wesley

What did it feel like when we learned our child has SLC6A1?

It was a combination of relief, fear, concern, and determination.

The hardest part of being a SLC6A1 family?

Not having clear answers about why she behaves, moves, and learns the way she does—or how best to help her.

What are your dreams for Haley?

We dream of Haley building knowledge, relationships, and hobbies, finding joy, and being able to move, eat, go to the bathroom and regulate her emotions like everyone else. We dream of a cure.

Why would you like people to donate to SLC6A1 Connect?

Please donate because this could easily be your child’s picture—but you’re fortunate it isn’t. The world is already a difficult place. If you are blessed with the ability to give, your generosity can bring more life, hope, and relief to families like ours living this very real nightmare.