Conor

NAME: Conor

CURRENT AGE: 8

HOME TOWN & STATE: Oakdale, PA

DIAGNOSIS DATE: June 2020

PARENTS: Nicole & Justine, Jaime & Liz

SIBLINGS: Ayla, Lincoln and Lucy

What it felt like when we learned our child has SLC6A1?

It was a very bittersweet day. I was so relieved to have a name for my son's struggles yet devastated to face the lifelong realities for him. It took almost 4 years to get his accurate diagnosis. I always knew that more was going on than "just autism" as some providers had told me in the early years. I spoke to Amber that very day he was diagnosed. She was and is the biggest blessing and hero for all of our Slc6a1 warriors.

The hardest part of being an SLC6A1 family?

Maintaining the best quality of life for Conor, his siblings, and parents. He is on the more severely affected end of the SLC6a1 spectrum.

What are your dreams for Conor?

My biggest dream is for Conor to be happy, safe, and to thrive among his peers and family members. To someday be cured of SLC6A1.

Why would you like people to donate to SLC6A1 Connect?

Please donate... because all of our children deserve to be able to walk, talk, learn, and live their lives seizure free. They deserve to have their neurological system restored so that life can be easier for them. Even for those of us with normally functioning systems, life can be hard. This disorder makes it so much harder... for Conor and every other child afflicted with SLC6A1.