NAME: William Louis
CURRENT AGE: 4
HOME TOWN & STATE: Story City, IA
DIAGNOSIS DATE: March 27th, 2020
PARENTS: Nate and Whitney
SIBLINGS: James and another due on May 12th!
What it felt like when we learned our child has SLC6A1? Paralyzing, scary and heartbreaking. Although we felt we knew there was a diagnosis for what William was experiencing, it didn’t change the feeling of loss knowing that he will have a more difficult life than most.
The hardest part of being an SLC6A1 family? The unknown. The unknown of the disease, of William’s future, of everything.
What are your dreams for William? To live a long, happy and fulfilling life. Regardless of his limitations.
Why would you like people to donate to SLC6A1 Connect? To provide William and all other kids affected by this disorder with a chance at a brighter future. For them all to experience life in any capacity that they would like and receive inclusion from the world and their peers.