Let’s Connect
Whether you’re a parent or caregiver navigating an SLC6A1 diagnosis, a patient seeking support, or a clinician or scientist interested in research collaboration, we’re glad you’re here.
SLC6A1 Connect is built on community. We’re here to answer questions, help you find the right resources, and connect you with others who understand this journey. If you’re not sure where to start, that’s okay. Reach out and we’ll take the next steps together.
Complete the form and a member of our team will be in touch soon.
Contact SLC6A1 Connect
We are here to support families, collaborate with researchers, and partner with individuals and organizations committed to advancing the understanding and treatment of SLC6A1-related disorders. Whether you have questions, need resources, or want to get involved, our team is ready to help.
Family Support & Resources
If you are a newly diagnosed family or seeking guidance, please contact:
Research & Scientific Collaboration
Researchers, clinicians, and industry partners interested in collaborating on studies, data, or therapeutic development, please contact:
Fundraising & Partnerships
For fundraising initiatives, partnerships, or event involvement, please contact:
Media & Communications
For press inquiries, media requests, or communications-related questions, please contact:
US Local Chapters
Because our families are located across the country and around the world, SLC6A1 Connect operates several local chapters to provide community support, assist with research-related needs, and lead regional fundraising efforts.
- Wisconsin Chapter – Erika Vandenberg, avandenberg@slc6a1connect.org
- Kansas/Missouri Chapter, Kim Fry, kfry@slc6a1connect.org
- Iowa Chapter, Whitney Feldman, wfeldman@slc6a1connect.org
- California Chapter, Sandy McEntee, sMcEntee@slc6a1connect.org
- Northeast Chapter, Laura Bermingham, lbermingham@slc6a1connect.org
Local chapter representatives are available to support families within their regions and coordinate community-driven initiatives.
Mailing Address
SLC6A1 Connect
1939 Temperence Hill Drive
Frisco, TX 75034