SLC6A1 Connect is a patient organization that was formed out of necessity – Our children are sick.

Our goal is for our organization not to not exist in 5 years because a cure is in place. By that time, we will have moved on to curing the next rare disease. SLC6A1’s research mindset was formed with that philosophy. We are in search of novel, innovative  solutions to advance research quickly for our impatient community.

We can’t give our children publications to stop seizures, help them walk, or even eat.

If you have a good idea, reach out.  Amber Freed (  Rare diseases work hard but SLC6A1 Connect works harder.

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