I moved to Pueblo, Colorado when I was 13 years old and eventually graduated as valedictorian of South High School. Like many college-bound youths, I traded the familiarity of home for someplace new and exciting–in my case, Denver–but I’ve never forgotten my years in Pueblo. When I go see my Read more…
My hope for 2019 isn’t necessarily a hope – it is an obsession to cure my son’s neurological disease. I reflect back to my family this time last year. We knew Maxwell was developmentally behind his twin sister Riley but we still clung to the dimming chance that he was Read more…
On this Christmas Day, we are reflecting on our many blessings. We are more than blessed. We have beautiful twins. We have more good days than bad days. We have hope. We have a faith stronger than oak. Merry Christmas! We hope everyone is having a wonderful day filled with Read more…
We put on the first symposium for Maxwell’s disease in late November and it was an overwhelming success. The many late nights of planning all came to fruition in the best way possible! The experience of having 50 brilliant scientists, from all over the world, collaborating on the cure for Read more…
FOR IMMEDIATE RELEASE Contact: Amber Freed, SLC6A1 Connect Phone: 303-907-8038 Email: afreed@slc6a1connect.org SLC6A1 Connect Earns GuideStar Platinum Seal for 2018 Potential funders can see that SLC6A1 Connect is Committed to Highest Level of Transparency DENVER, CO, October 2018 – SLC6A1 Connect is proud to announce that we have earned the GuideStar Platinum Seal Read more…
We can all fondly remember some of the best moments of our life, like a wedding, graduation, or the birth of a child. I will never forget the feeling of meeting Maxwell and Riley for the first time. I didn’t know a human heart was capable of that much love. Read more…
This summer has been a whirlwind between Maxwell’s diagnosis, the creation of SLC6A1 Connect, and many exciting developments in the way of research. Amber has been hard at work setting up the organization, campaigning for funding and donations, and talking to researchers. We will share all of the exciting developments Read more…